Google
Trusted Resources: News & Events
Latest announcements and gatherings
The Life, Death, and Dream of a Research Diversity Crusader
“We want to have a nation in which the accidents and circumstances of our birth aren’t determining our fate,” he told a room of reporters a few days later. “And if we’re born with a particular disease or a particular genetic makeup that makes us more vulnerable to something; that that’s not our destiny, that’s not our fate—that we can remake it.”
They were the words Shakir Cannon had been waiting his whole life to hear. For 32 years he had been living with a genetic disorder, sickle cell disease, which predominantly affects African Americans. He managed it the same way people had been doing for decades: He got monthly blood transfusions and took medications for the crippling bouts of pain in his bones and joints. He didn’t have the money for a bone marrow transplant. But he dreamed that one day there’d be an affordable, universal cure—and he was a vocal advocate for research to make that a reality.
+myBinderRelated Content
-
Acute Care Utilization in Pediatric Sickle Cell Disease and Sickle Cell Trait in the USA: Prevalence, Temporal Trend...The objective of this study was to analy...
-
American Society of Hematology 2020 Guidelines for Sickle Cell Disease: Management of Acute and Chronic PainObjective: These evidence-based guideli...
-
Sickle-Cell Patients See Hope in CRISPRSickle-cell disease is one of the most c...
-
Webinar Series: Sickle Cell Science: Path to Progress – Genetic Therapies in Sickle Cell DiseaseTo commemorate Sickle Cell Awareness Mon...
-
Sancilio Pharmaceuticals Company, Inc. (SPCI) Receives Rare Pediatric Disease Designation From the US Food and Drug ...Sancilio Pharmaceuticals Company, Inc. (...
-
Phase 3 Trial of Rivipansel in Treating SCD Pain Crisis Fails to Meet Goals, Pfizer AnnouncesThe Phase 3 RESET trial testing the effe...
-
Cassandra Josephson, MDDr. Cassandra D. Josephson is the Medica...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.